Tuesday, November 6, 2012

Finally Updating

I know I look terrible lol,
but what can you expect?
Its been very rough theses past few days. I'm too tired to even update, but Rick pushes me when I need to go the extra mile. Yesterday my aunt & uncle came to visit, they are so sweet and good to me, going above and beyond to make sure I'm happy. I got 3 balloons (one was Batman), I got soo many roses, can't even count, & my aunt who is a nurse even got me a portable little blood pressure/hr monitor gadget. I was really exhausted all day but I dont like to just lay in bed when I have company over :\

My visiting nurse came in the evening to change the dressing on my catheter, and not long after my mom came over too. It was a full house, very nice, but at the same time overwhelming for me. By the time my mother left I was beyond spent. I try to be strong in the company of others, especially my family but that alone is exhausting enough and I end up breaking down when everyone leaves. My husband says I'm too concerned about everyone else's feelings, he says I need to let myself be sick and cared for right now. I'm afraid to upset everyone and let them see me at my weakest. I'm stubborn, I need to look strong! Keeping that image up has been hard lately. So I guess in this moment of weakness all I ask is just for your affections, love, care, thoughts, a joke, anything genuinely simple enough to make me smile for a second. I need your attention right now :\ it distracts me from nausea, it makes me feel better when now all I can do is lay in bed for days and wait this out.

Sunday, November 4, 2012

Day 2 & 3 of ICE 2nd Cycle :(

Before:
 
I was feeling okay Friday morning up until my mini surgery to get a catheter put in my chest.
After:
Whatever medicine they gave me to knock me out, has been making making me feel very yucky. I have been very nauseous since yesterday then. I am too tired to do anything, I feel weak, and miserable to sum it up.

This video is of me still loopy after the mini catheter surgery & as I was talking to my husband he thought it would be funny to record my silly ramblings. (Hence the title: Crackhead Nina)

The catheter/medicine had made me nauseous soI tried to sleep away this feeling. Friday night I unexpectedly threw up my dinner. I had been nauseous but tolerating it until I sat up in my bed and I couldn't hold back :(

Saturday rolled along and I stayed nauseous all day, I mostly slept the day away, my appetite had been dwindling so I hadn't eaten much all day. Once again at night I threw up a little bit. Yesterday morning I weighed 121. I walked 6 laps for exercise.

Today Sunday morning I weigh 119... sorry but its hard to eat most foods :\ I will push myself more. My resting heart rate is around 120 again. No good news to report. Just send me good thoughts and wishes that this misery of mine is short lived. I just want it to pass fast already.

Thursday, November 1, 2012

Day 1 Second Cycle of ICE

What a week! My appointment should have been on Monday but in the advent of 'Hurricane Sandy' aka 'Frankenstorm', it was pushed to today -Thursday. My appointment was for 4pm but my doctor specially requested that I come in to see her first around 1:30. I did not arrive to see her until about 2:30. There was surprisingly NO traffic coming into the city. I unexpectedly had to get a bone marrow biopsy done today, THANKFULLY my doctor is good at what she does & she made it hurt the least possible. It was probably the least painful bone marrow biopsy I've gotten done. As soon as it was done a woman from the Stem Cell team came & spoke to me about the coming procedures I'll have to undergo before I start my transplant.

I finally arrived at my main hospital around 5pm (an hour late) & they took me to my room quite quickly. Here I am sitting quite bored because I keep being asked a million repeat questions about recent symptoms, how I feel, my medical history, etc. It really gets annoying after awhile. My nurse right now is pretty dull, but her shift ends soon & I'm hoping the one I have overnight has some personality. My vitals are good, weight remains the same.

Exercise Update: I'm disappointed in myself for being lazy during 'Sandy', I did a tiny bit of exercise but nothing to be proud of. Today I made sure to lift some weights though: db bicep curls, db military press, situps, lunges, squats for the most part.

Also, since Halloween didn't really get to happen this year I decided to wear my Batman outfit today. I swear I don't look crazy! :)